Who We Are

The Coalition for Children Affected by AIDS (The Coalition) is a unique group of global donors, United Nations agencies, non-governmental agencies, and independent experts. We work together to enable all children affected by HIV and AIDS to survive and thrive at home, school and in their communities. This includes children and adolescents (aged 0-18 years) infected with HIV and AIDS; those at risk of infection; and children affected by the social and economic impacts of others close to them having the disease

The Coalition aims to make the HIV sector more effective for children, and to mobilise broader international development sectors to ensure that they better serve children affected by HIV and AIDS. Our full strategy 2017-19 is available here.

The Coalition combines advocacy, research, and technical support to ensure that all children affected by AIDS are supported to survive and overcome the disease and its impacts. To this end we:

  • Convene at the highest technical and political levels;
  • Gather, analyze and present cutting edge evidence; and
  • Strengthen the voices of children affected AIDS, as well as their parents / carers, in global debates.
Our Members

Our Members are esteemed leaders in their own fields who have dedicated their careers to understanding and improving the lives of children affected by AIDS in every region of the world. Each has extensive technical knowledge, is influential at the global level, and is deeply committed. They have all joined the Coalition to strengthen our collective voice in calling for more to be done to enable children affected to realise their full potential.

Executive Committee

Lisa Bohmer (Chair), Conrad N. Hilton Foundation (US)

Noreen Huni (Co-Chair), Regional Inter-Agency Task Team on Children Affected by AIDS (South Africa)

Nicci Stein (Treasurer & Trustee Representative), The Teresa Group (Canada)

Corinna Csáky, (Coalition Manager) (UK)

Members

Florence Anam, International Community of Women Living with HIV (Kenya)

Anurita Bains, UNICEF (East & Southern Africa Office & representing UNICEF Head Quarters)(Kenya)

Nina Blackwell, Firelight Foundation (US)

Lucie Cluver, Oxford University & University of Cape Town (South Africa/UK)

Catherine Connor, Elizabeth Glaser Pediatric AIDS Foundation (US)

Thomas Fenn, Catholic Relief Services (US)

Tamar Gabelnick, Elizabeth Glaser Pediatric AIDS Foundation (US)

Joel Goldstein, Elizabeth Taylor AIDS Foundation

Doortje ‘t Hart, Aidsfonds (Netherlands)

Barbara Kalima Phiri, Regional Interagency Task Team on Children and HIV for Eastern and Southern Africa and World Vision International (South Africa)

Stuart Kean, Regional Inter-Agency Task Team on Children Affected by AIDS (UK)

Dominic Kemps, ViiV Positive Action for Children Fund (UK)

Cecilia Kihara, International HIV/AIDS Alliance (UK)

Deborah Von Zinkernagel, UNAIDS Secretariat (Geneva)

Naume Kupe, Regional Inter-Agency Task Team on Children Affected by AIDS (South Africa)

Linda Richter, Universities of the Witwatersrand & KwaZulu-Natal & Human Sciences Research Council (South Africa)

Tamsen Rochat, Human Sciences Research Council & University of the Witwatersrand (South Africa)

Stefan Sengstmann, World Vision (Germany)

Lorraine Sherr, Royal Free and University College Medical School (UK)

Jessica Tabler Mullis, Save the Children (US)

Other, non-member grant making organizations and governments also contribute to our work. We thank those funders for their generosity and trust, and for supporting our vision.

The Norwegian Agency for Development Cooperation

Sweden

 

Our History

In 2004, frustrated at the lack of attention paid to children at the International AIDS Conference, a group of global health leaders came together to drive increased focus on this extremely vulnerable population. This group was comprised of pioneers in the fight including:

One of the first undertakings of the Coalition was partnering with The Teresa Group to host a biennial Children and HIV Symposium to raise the profile of children in the days leading up to the International AIDS Conference.  We have run this highly attended event since 2008.

 

Ambassadors

The Coalition recognizes that children and their parents and carers affected by HIV and AIDS have to lead the way to change. They are the experts of their own experiences and more must be done to involve them in decisions around funding, programming and policies.

There are many dynamic networks operating in every region of the world that contain remarkable champions who can speak from first hand experience about HIV and AIDS and their impact on children and families. The Coalition seeks to strengthen these voices by working with a select group of ambassadors representing networks working with children, families and caregivers affected by HIV and AIDS to:

  • Participate in global level fora, and
  • Mobilise their own networks to prepare for and follow up on opportunities resulting from global level engagement.

Jacquelyne Alesi, Uganda. Jacque founded and ran, until recently, UNYPA – an association of young people living with HIV in Uganda. She has mentored many young people as advocates and recently passed over the management of UNYPA to them. She now supports them in an advisory capacity and is passionate about supporting young people to be agents of change. She is an experienced advocate, a powerful speaker and, as a young mother, can provide a care-givers perspective on children affected by AIDS. She was nominated in 2016 for a global award to people under 40 championing family planning.

Clara Banya, Malawi.  Clara is a mother of two children, one of whom is HIV positive. She also has a husband living with HIV. She is a dynamic and experienced speaker about the problems and solutions to tackling stigma, improving access and adherence as well as how to support caregivers so that their children can survive and thrive HIV. She is part of the Global Fund Advocates Network and National Coordinator for the International Community of Women Living with HIV (ICW Malawi Chapter).

Duduzile Dlamini runs the Sisonke project, a movement of sex workers in South Africa, helping them to fight for their rights and entitlements. This project is part of SWEAT Mothers for the Future, South Africa. Dudu is an experienced global advocate of sex worker rights. She also led field research in South Africa that was used to develop the Coalition’s recent work with the global working group on the children of key populations. Her organisation has also taken up this issue in their programming.

Florence Ngobeni.  As an EGPAF ambassador for many years, Florence worked at an EGPAF-funded clinic in Soweto, South Africa. She also is a trained professional in psycho-social support and is a former member of ICW.  She lost her first husband and child to HIV and has since remarried and had two HIV negative children. Originally from South Africa, Florence now lives in the United Kingdom.